Welcome to our privacy notice.
We respect your privacy and we are committed to protecting your personal data. This privacy notice will inform you as to how we look after your personal data when you visit our website or mobile application (regardless of where you visit it from) and tell you about your privacy rights and how the law protects you.
This privacy notice is provided in a layered format, so you can click through to the specific areas set out below. Please also use the Glossary to understand the meaning of some of the terms used in this privacy notice.
This privacy notice aims to give you information on how we collect and process your personal data through your use of this website or mobile application, including any data you may provide through this website when you register with us to participate in the Diversity and Selection Studies.
This website is not intended for children and we do not knowingly collect data relating to children.
It is important that you read this privacy notice together with any other privacy notice or fair processing notice we may provide on specific occasions when we are collecting or processing personal data about you so that you are fully aware of how and why we are using your data. This privacy notice supplements the other notices and is not intended to override them.Controller
Gilead Sciences, Inc is the controller and responsible for your personal data (referred to as "Gilead Sciences, Inc", "we", "us" or "our" in this privacy notice).
If you have any questions about this privacy notice, including any requests to exercise Your legal rights, please contact us with your record locator number using the details set out below. Note that your record locator number can be found within your doctor’s office contact details email.Contact details
Our full details are: Neonstone Limited: First Floor, Unit 5D, Langley Business Centre, Station Road, Slough, Berkshire, SL3 8DS
Full name of legal entity: Neonstone, LLC
Name or title: Kierownik ds. poufności danych
Email address: firstname.lastname@example.orgFor Australia and New Zealand:
The Privacy Officer is responsible for overseeing questions in relation to this privacy notice. If you have any questions about this privacy notice, including any requests to exercise your legal rights, contact the Privacy officer by writing to Privacy Officer, Gilead Sciences Pty Ltd, Level 6, 417 St Kilda Road, Melbourne, 3004 or AU.Privacy@gilead.com.Changes to the privacy notice and your duty to inform us of changes
This version was last updated on 12-Jul-2018.
It is important that the personal data we hold about you is accurate and current. Please keep us informed if your personal data changes during your relationship with us. You also have the right to request that your information be changed or updated. If you require information to be amended, please contact us.Third-party links
This website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy statements. When you leave our website, we encourage you to read the privacy notice of every website you visit.
As a reference, the following link contains a list of the research sites: https://clinicaltrials.gov/ct2/show/study/NCT02914522?term=NCT02914522&rank=1&show_locs=Y#locn
Personal data, or personal information, means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data).
We may collect, use, store and transfer different kinds of personal data about you which we have grouped together follows:
We collect Special Categories of Personal Data about you as described above which includes details about information about your health. We do NOT collect any information about criminal convictions and offences.
We also collect, use and share Aggregated Data such as statistical or demographic data for any purpose. Aggregated Data may be derived from your personal data but is not considered personal data in law as this data does not directly or indirectly reveal your identity. For example, we may aggregate your Usage Data to calculate the percentage of users accessing a specific website feature. However, if we combine or connect Aggregated Data with your personal data so that it can directly or indirectly identify you, we treat the combined data as personal data which will be used in accordance with this privacy notice.If you fail to provide personal data
Where we need to collect personal data and you fail to provide the data requested, we may not be able to provide you with access to study information.
We use different methods to collect data from and about you including through:
We will only use your personal data when the law allows us to. Processing of your Personal Data includes where we may adapt, align, alter, combine, consult, destroy, disclose by transmission, dissemination, erase, organise, record, restrict, retrieve, store, structure, use, or otherwise make available.
Most commonly, we will use your personal data in the following circumstances:
|Processing and reporting of adverse events||Communications regarding our studies|
|To communicate product safety information to you||Communications about market research and product developments|
|Product quality and complaint management||Communications about product information|
|Administering and maintaining legally required product registries, including medical device tracking||Communications about general health information (such as information on certain health conditions)|
|Administering and maintaining voluntary patient engagement and support platforms||To determine your eligibility for certain products, services or programs|
|Responding to your requests for information, products, or services||Organisational planning and development (such as internal communications, budgets, administration and project management)|
|Our company compliance and facility and network security purposes||Administering educational programs|
|Internal investigations of possible misconduct or failure to comply with our policies and procedures||Business and marketing research|
|Auditing our programs and services for compliance purposes||Authenticating and verifying your identity in your interactions with us|
|Legal proceedings and government investigations (such as pursuant to warrants, subpoenas and court legal orders||Tracking your interactions (online and offline) with us|
|Where we have legal obligations to process the personal data||Improvement and development of our products and services|
|Device and application diagnostics||Statistical analysis|
|Payment processing; and/or website administration|
Generally, we do not rely on consent as a legal basis for processing your personal data other than as follows:
Click 10 to find out more about the types of lawful basis that we will rely on to process your personal data.Marketing
We strive to provide you with choices regarding certain personal data uses, particularly around marketing and advertising. We have established the following personal data control mechanisms:Promotional offers from us
We may use your Identity, Contact, Technical, Usage and Profile Data to form a view on what we think you may want or need, or what may be of interest to you. This is how we decide which products, services and offers may be relevant for you (we call this marketing).
You will receive marketing communications from us if you have requested information from us or been provided services from us and in each case you have not opted out of receiving that marketing.Third-party marketing
We will get your express opt-in consent before we share your personal data with any company outside the Gilead Sciences, Inc. group of companies for marketing purposes.Opting out
You can ask us or third parties to stop sending you marketing messages at any time by logging into the website and checking or unchecking relevant boxes to adjust your marketing preferences or by following the opt-out links on any marketing message sent to you or by contacting us at any time.
Where you opt out of receiving these marketing messages, this will not apply to personal data provided to us as a result of being provided a service by us, product/service experience or other transactions.
You can decide to withdraw any consent or explicit consent you have given us at any time by contacting us with your record locator number at email@example.com.Cookies
We will only use your personal data for the purposes for which we collected it. If you wish to get an explanation as to how the processing for the new purpose is compatible with the original purpose, please contact us with your record locator number at firstname.lastname@example.org.
Please note that we may process your personal data without your knowledge or consent, in compliance with the above rules, where this is required by law.
We may have to share your personal data with the parties set out below:
Third parties to whom we may choose to sell, transfer, or merge parts of our business or our assets. Alternatively, we may seek to acquire other businesses or merge with them. If a change happens to our business, then the new owners may use your personal data in the same way as set out in this privacy notice. We require all third parties to respect the security of your personal data and to treat it in accordance with the law. We do not allow our third-party service providers to use your personal data for their own purposes and only permit them to process your personal data for specified purposes and in accordance with our instructions.
Specifically, we provide personal information to third parties as follows:
|Recipient of Personal Information (Contact Info.)||Country Where Recipient is Located||Items of Personal Information Provided||Purposes for Which Recipient Will Use Personal Information||Retention Period|
|Your designated Study Site https://clinicaltrials.gov/ct2/show/study/NCT02914522?term=NCT02914522&rank=1&show_locs=Y#locn||Age, gender, postal code, country, pregnancy, contraception plans, symptom history, medication history, email address, conditions||To follow up with the patient and further assess eligibility via a screening visit where confirmed||For duration of the study|
We also delegate the processing of personal information as follows:
|Delegatee||Descriptions of Delegated Services|
|Neonstone Ltd.||Provision IT and hosting services in respect of our Website and related IT services|
|OVH Ltd.||Provision IT and hosting services in respect of our Website and related IT services|
We share your personal data within the Gilead Sciences, Inc Group. Some of the database locations may be in countries that do not ensure an adequate level of data protection similar to the laws in the country in which you reside. Regardless, all our affiliates are required to treat your Personal Data in accordance with this Privacy Notice and our privacy and data protection policies and procedures.
EU-US and Swiss-US Privacy Shield Notice: Gilead Sciences, Inc and its affiliates in the United States may receive Personal Data from individuals in the European Economic Area (EEA) and Switzerland. We comply with the EU-US and Swiss-US Privacy Shield Principles (Privacy Shield Principles), with respect to the collection, use, and retention of Personal Data from the EEA and Switzerland. If there is any conflict between the terms of this Privacy Notice and the Privacy Shield Principles, the Privacy Shield Principles will govern. For more information about the Privacy Shield Framework, go to https://www.privacyshield.gov/. The International Centre for Dispute Resolution (ICDR) acts as our third-party dispute resolution provider, as required by the Privacy Shield Framework. If you have a complaint about our Privacy Shield compliance, you can contact us directly or contact the ICDR at http://go.adr.org/privacyshield.html. In certain circumstances it may be possible for you to invoke binding arbitration. We are subject to the investigatory and enforcement powers of the US Federal Trade Commission regarding our adherence to the Privacy Shield Principles.
We may transmit your Personal Data to our third parties with whom we contract to carry out services on our behalf to perform activities or functions related to the processing purposes regarding your Personal Data that are described above. This transfer of data will include, among others, the transfer of personal data to clinical trial sites located throughout the rest of the world. Our third parties are contractually obligated to comply with applicable laws or regulations, including having a valid EU Personal Data cross-border transfer mechanism in place to receive the EU personal data, which can include an “adequacy” determination by the European Commission, EU-US and/or Swiss-US Privacy Shield certifications, and/or executing EU Standard Contractual Clauses with us.
For more information about our cross-border transfers of your Personal Data, please contact us with your record locator number at email@example.com.
We have put in place appropriate security measures to prevent your personal data from being accidentally lost, used or accessed in an unauthorised way, altered or disclosed. In addition, we limit access to your personal data to those employees, agents, contractors and other third parties who have a business need to know. They will only process your personal data on our instructions and they are subject to a duty of confidentiality.
We have put in place procedures to deal with any suspected personal data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.
We will only retain your personal data for 5 years, unless there is a legal reason for the data to be retained longer.
To determine the appropriate retention period for personal data, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal requirements.
Details of retention periods for different aspects of your personal data are available in our retention policy which you can request from us by contacting us.
When destroying personal information, we will take commercially reasonable and technically possible measures to make the personal information irrecoverable and irreproducible, as follows:
Under certain circumstances, you have rights under data protection laws in relation to your personal data:
If you wish to exercise any of the rights set out above, please contact us with your record locator number at firstname.lastname@example.org.No fee required
You will not have to pay a fee to access your personal data (or to exercise any of the other rights). However, we may refuse to comply if your request is clearly unfounded, repetitive or excessive.What we may need from you
We may need to request specific information from you to help us confirm your identity and ensure your right to access your personal data (or to exercise any of your other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.Time limit to respond
We try to respond to all legitimate requests within 10 days. Occasionally it may take us longer than 10 days if your request is particularly complex or you have made a number of requests. In this case, we will notify you and keep you updated.
Performance of Contract means processing your data where it is necessary for the performance of a contract to which you are a party or to take steps at your request before entering into such a contract.
Comply with a legal or regulatory obligation means processing your personal data where it is necessary for compliance with a legal or regulatory obligation that we are subject to.THIRD PARTIES External Third Parties